Email this article 
Post a Comment The ABCDE of good care: A thematic analysis on the art of caring for terminally ill patients in Malaysia
Abstract - 523 PDF - 36Abstract
The first and foremost requisite of caring is to treat patients as persons, not as diseases or bed-numbers. A qualitative study was conducted to explore the perception of good care from the point of view of 13 terminally ill patients
and 8 caregiving family members of the University of Malaya Medical Centre, Kuala Lumpur, Malaysia. The results were thematically analyzed. Five basic themes were generated: (1) Attitude, (2) Behaviour, (3) Communication, (4) Duty and (5) Environment—ABCDE. The results may provide useful insight into the art of caring.
Keywords
Full Text:
PDFReferences
Singer AE, Meeker D, Teno JM, Lynn J, Lunney JR, et al. Symptom trends in the last year of life from 1998 to 2010: A cohort study. Ann Intern Med 2015; 162(3): 175–183. doi: 10.7326/M13-1609.
Earle CC, Neville BA, Landrum MB, Ayanian JZ, Block SD, et al. Trends in the aggressiveness of cancer care near the end of life. J Clin Oncol 2004; 22(2): 315–321. doi: 10.1200/JCO.2004.08.136.
Harrington SE, Smith TJ. The role of chemotherapy at the end of life. “When is enough, enough?” JAMA 2008; 299(22): 2667–2678. doi: 10.1001/jama.299.22.2667.
Brickner L, Scannell K, Marquet S, Ackerson L. Barriers to hospice care and referrals: A survey of physicians’ knowledge, attitudes, and perceptions in a health maintenance organization. J Palliat Med 2004; 7(3): 411–418. doi: 10.1089/1096621041349518.
Jacobsen R, Sjøgren P, Møldrup C, Christrup L. Physician related barriers to cancer pain management with opioid analgesics: A systematic review. J Opioid Manag 2007; 3(4): 207–214.
Tan SB, Ng CG, Lim EJ, Loh EC. Health care interactional suffering in palliative care. Am J Hosp Palliat Care 2014; 31(3): 307–314. doi: 10.1177/1049909113490065.
Berglund M, Westin L, Svanstrӧm R, Sundler AJ. Suffering caused by care—Patients’ experiences from hospital settings. Int J Qual Stud Health Well-being 2012; 7: 10. doi: 10.3402/qhw.v7i0.18688.
Arman M, Rehnsfeldt A, Lindholm L, Hamrin E, Eriksson K. Suffering related to health care: A study of breast cancer patients’ experiences. Int J Nurs Pract 2004; 10(6): 248–256. doi: 10.1111/j.1440-172x.2004.00491.x.
Cassell EJ. The nature of suffering and the goals of medicine. New York: Oxford University Press; 1991.
Peabody FW. The care of the patient. JAMA 1927; 88: 877–882. doi: 10.1001/jama.1927.02680380001001.
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3(2): 77–101. doi: 10.1191/1478088706qp063oa.
Simon ST, Ramsenthaler C, Bausewein C, Krischke N, Geiss G. Core attitudes of professionals in palliative care: A qualitative study. Int J Palliat Nurs 2009; 15(8): 405–411. doi: 10.12968/ijpn.2009.15.8.43800.
Speck P, Higginson I, Addington-Hall J. Spiritual needs in health care. BMJ 2004; 329(7458): 123–124. doi: https://doi.org/10.1136/bmj.329.7458.123.
Lange M, Thom B, Kline N. Assessing nurses’ attitudes toward death and caring of dying patients in a comprehensive cancer centres. Oncol Nurs Forum 2008; 35(5): 955–959. doi: 10.1188/08.ONF.955-959.
Peters L, Cant S, Payne S, O’Connor M, McDermott F, et al. How death anxiety impacts nurses’ caring for patients at the end of life: A review of literature. Open Nurs J 2013: 7: 14–21. doi: 10.2174/1874434601307010014.
Finch L. Development of a substantive theory of nurse caring. Int J Human Caring 2008; 12(1): 25–32.
Von Essen L, Sjӧdén PO. The importance of nurse caring behaviours as perceived by Swedish hospital patients and nursing staff. Int J Nurs Stud 1991; 28(3): 267–281. doi: 10.1016/S0020-7489(03)00060-9.
Epstein RM, Street RL. Patient-centered communication in cancer care: Promoting healing and reducing suffering. Bethesda MD: National Cancer Institute, NIH; 2007. Publication No. 07-6225.
Siddiqui ZK, Zuccarelli R, Durkin N, Wu AW, Brotman DJ, et al. Changes in patient satisfaction related to hospital renovation: Experience with a new clinical building. J Hosp Med 2015; 10(3): 165–171. doi: 10.1002/jhm.2297.
Dall’Oglio I, Nicolò R, Di Ciommo V, Niccolini F, Quercioli C, et al. A systematic review of hospital food service patient satisfaction studies. J Acad Nutr Diet 2015; 115(4): 567–584. doi: https://doi.org/10.1017/S1368980012003333.
Anderson RT, Camacho FT, Balkrishnan R. Willing to wait?: The influence of patient wait time on satisfaction with primary care. BMC Health Serv Res 2007; 7: 31. doi: 10.1186/1472-6963-7-31.
Lown B. The lost art of healing. New York: Houghton Mifflin; 1996.
DOI: http://dx.doi.org/10.18282/amor.v3.is1.210
Refbacks
- There are currently no refbacks.
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
